Who we are
The ANISA Sickle Cell Foundation is a dedicated non-profit organization committed to improving the lives of individuals and families affected by sickle cell disease. Founded on the principles of awareness, support, and advocacy, we strive to provide education, resources, and compassionate care to those navigating the challenges of this genetic condition. Through community outreach, research initiatives, and partnerships, we aim to empower patients, reduce stigma, and work toward a future free from the burdens of sickle cell disease.
Sickle Cell Disease
is a national emergency in Nigeria.
All age prevalence of sickle cell disease male and female 2021 by Lancet Hematology, 2023.
Sickle Cell Trait Education and Awareness
Knowledge is the foundation of prevention. We prioritize educating our communities about sickle cell trait (SCT) and sickle cell disease through targeted outreach programs, workshops, and digital campaigns. By partnering with underserved communities, schools, corporate sectors, religious institutions, and healthcare providers, we demystify myths and promote early blood genotype screening. Our goal is to reduce the prevalence of sickle cell disease, reduce societal stigma associated with SCD, encourage informed family planning, and empower individuals to take charge of their health
Psychosocial Support and Empowerment
Living with sickle cell disease extends beyond pain and other physical symptoms. It significantly impacts mental health, relationships, and self-esteem. Our psychosocial support programs include counselling services, peer-led support groups, and mentorship networks that foster emotional resilience. We also host empowerment workshops focused on digital career development, financial literacy, and self-advocacy to equip sickle cell warriors to thrive in our dynamic world despite societal barriers. By nurturing holistic well-being, we’re building a community where no one sees SCD as a limiting factor to achieving success.
Sickle Cell Trait Education and Awareness
Regular blood products and blood transfusions are a lifeline for many individuals battling sickle cell complications, yet the supply of blood products doe no’t match the ever increasing demand. Nigeria currently supplies less than 30% of its blood needs because healthy donors like you and I are not willing to voluntarily donate blood. We organize blood donation drives in partnership with the Lagos State Blood Transfusion Services (LSBTS), mobilizing volunteers and raising awareness about the urgent need for ethnically matched black donors. Each drive not only saves lives but also strengthens community solidarity, ensuring sustainable access to safe blood.
Clinical Trials Research
Advancing sickle cell treatment requires the input of sickle cell patients who understand their most pressing needs. We educate our local communities about the importance of participating in clinical trials and advocate for patient-centric trial designs. We bridge gaps in medical knowledge among underrepresented populations, ensuring that diverse voices shape the future of SCD care.
Inclusive Policies
Systemic change begins with inclusive policies. We advocate for laws from healthcare access to and workplace anti-discriminatory practices that protect the rights of those living with SCD. We engage policymakers, employers, and educators to push for flexible work hours, comprehensive insurance coverage, and inclusive educational environments. Our policy initiatives aim to create a society where individuals with SCD can live with dignity and equal opportunity like every other human being.
Join The Network And Expand Our Reach
Together, let’s raise awareness, promote education, and support individuals affected by Sickle Cell Disease. Collaborate with healthcare providers, hospitals, and research institutions to promote awareness and education. Participate in awareness campaigns, fundraising events, and advocacy initiatives to help create positive change for the SCD community
Brands We Have Partner With
